RealTalk MS show

RealTalk MS

Summary: Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You’ll meet the scientists who are creating tomorrow’s MS treatments today. You’ll hear from the experts discussing how the latest tweaks and changes to our healthcare laws will impact your MS treatment. And we’ll be talking to the courageous MS warriors who are out there advocating on behalf of the MS community every day, as well as the men and women who are committed to living their best lives with MS and living their best lives as MS caregivers. If you're dealing with multiple sclerosis in your life -- as a patient, caregiver, family member, or friend -- join us each week for RealTalk MS.

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  • Artist: Jon Strum
  • Copyright: Copyright 2020. All rights reserved.

Podcasts:

 Episode 93: Stem Cells Are In the News & A Research Update from Dr. Karen Lee, V.P. of Research at the MS Society of Canada | File Type: audio/mpeg | Duration: 27:53

Stem Cells are in the news, and we're talking about the U.S. District Court decision that will impact hundreds of stem cell clinics in the United States and the FDA's ability to regulate them. We'll also share two breakthroughs in stem cell research that will likely impact the future of stem cell therapy. My guest on the podcast is Dr. Karen Lee, VP of Research at the MS Society of Canada, and we're talking about a new research study that's focused on answering the questions, how and why does MS progres

 Episode 92: MS Research with Dr. Jeffrey Huang | File Type: audio/mpeg | Duration: 30:45

MS research scientist Dr. Jeffrey Huang is this year's recipient of the Harry Weaver Neuroscience Scholar Award from the National MS Society. On this week's podcast, we're talking with Dr. Huang about his potentially groundbreaking research, and we'll even ask him how one becomes an MS research scientist.

 Bonus: From the CMSC Annual Meeting Day 3 (5/31/2019) | File Type: audio/mpeg | Duration: 27:13

We're at the Consortium of Multiple Sclerosis Centers Annual Meeting in Seattle, Washington,talking about mental health care for people living with MS, coping with anxiety, and the real advantages of telerehabilitation. We even sat down to talk with with artist and MS Activist Lydia Emily. We have a lot to talk about! Are you ready for RealTalk MS??!

 Bonus: From the CMSC Annual Meeting Day 2 (5/30/2019) | File Type: audio/mpeg | Duration: 16:44

We're at the Consortium of Multiple Sclerosis Centers Annual Meeting in Seattle, Washington, and we're talking about community based programs to enhance comprehensive MS care, the MS care partner's perspective, improving MS treatment outcomes, and more. We have a lot to talk about! Are you ready for RealTalk MS??!

 Bonus: From the CMSC Meeting Day 1 (5/29/2019) | File Type: audio/mpeg | Duration: 19:36

We're at the Consortium of Multiple Sclerosis Centers Annual Meeting in Seattle, Washington, and we're talking about MS Navigators, Myelocortical MS, a new paradigm in how patients and doctors should be communicating, and more. We have a lot to talk about! Are you ready for RealTalk MS??!

 Episode 91: International Progressive MS Alliance Research Update | File Type: audio/mpeg | Duration: 23:26

The International Progressive MS Alliance is an unprecedented and unparalleled global effort to understand and treat progressive MS.   Last week, I was in Copenhagen, Denmark, for an important meeting of the Progressive MS Alliance Scientific Steering Committee. And in today's episode, I'll update you on the status of three potentially breakthrough progressive MS international research projects.

 Episode 90: The MS Association of America with President & CEO Gina Murdoch | File Type: audio/mpeg | Duration: 33:07

My guest is Gina Murdoch, President and CEO of the Multiple Sclerosis Association of America. The MSAA provides programs and resources designed to improve the lives of people affected by MS. Whether it's financial assistance for an MRI, a new computer, mobility equipment, or even a cooling vest, the MSAA can help. We're also talking about new progressive MS research, a search engine that can connect you to financial assistance for MS medications, a program for young adults living with MS, and lots more.

 Episode 89: Exercise & MS with Dr. Lara Pilutti | File Type: audio/mpeg | Duration: 26:45

I get a lot of listener question from people living with progressive MS, wondering whether the conversation about physical activity and MS applies to them. My guest this week is Dr. Lara Pilutti,  an expert in the role of exercise in the management and treatment of disability arising from multiple sclerosis. We're talking about how you want to be thinking about exercise and why you want to be thinking about exercise, whether you're living with relapsing-remitting MS or progressive MS.

 Bonus: From the AAN Annual Meeting (Tues 5/07) | File Type: audio/mpeg | Duration: 11:42

We're at the American Academy of Neurology Annual Meeting in Philadelphia, and we're talking about teleneurology, stem cells, a new algorithm, and a new research network with ambitious goals. Today, it's a real peek into the future! We have a lot to talk about! Are you ready for RealTalk MS??!

 Bonus: From the AAN Annual Meeting (Mon. 5/06) | File Type: audio/mpeg | Duration: 09:17

We're looking into the future of applying precision medicine to treat MS. We're talking about an artificial intelligence application that's designed to predict the course of your MS and recommend the best treatment plan for you We'll also tell you about a "digital prescription therapeutic" designed to treat depression in people living with MS. Plus more research updates!

 Bonus: From the AAN Annual Meeting (Sun. 5/05) | File Type: audio/mpeg | Duration: 09:14

It's my first day at the American Academy of Neurology Annual Meeting, and we're talking about a great presentation on Progress in Progressive MS and some eye-opening news about the amount of money we're spending in the U.S. on prescription drugs to treat neurological conditions.

 Episode 88: Fighting for A Cure with MS Activist Yvette Brisco | File Type: audio/mpeg | Duration: 34:38

My guest this week is Yvette Brisco. Yvette is an MS activist and an MS warrior. And when Yvette talks about the fight to find a cure, she means it literally! We're also talking about the European Medicine Agency's safety review of Lemtrada. We'll tell you about the 20 million American caregivers who are performing medical or nursing tasks for which they've received no training. And you'll hear about a web portal that uses language skills and artificial intelligence to predict cognitive decline.

 Episode 87: Robots & MS Rehabilitation with Dr. Maja Mataric | File Type: audio/mpeg | Duration: 33:40

Robots?? Really??? The answer is YES! Dr. Maja Mataric joins us on the podcast, and we're talking about how socially assistive robots could be real game-changers for people living with MS and other chronic conditions, as well as their caregivers. We're also talking about the $24.4 million investment by the National MS Society that will support 64 new MS research projects. And we'll tell you about the research team at Oregon Health & Sciences University that believes they have solved remyelination!

 Episode 86: Cannabis & MS with Aryn Sieber | File Type: audio/mpeg | Duration: 39:44

We're at a point in time when there's a tremendous amount of interest as well as confusion surrounding cannabis-based treatments for MS. My guest is Aryn Sieber, the CEO and Founder of the CannaCauses Foundation and Cannaisseur Brands.  Aryn partnered with MS centers and neurologists to better understand how cannabis-based treatments can help people better manage their MS symptoms while reducing their dependence on other prescription medications.

 Episode 85: Meat Fight with MS Warrior Alice Laussade | File Type: audio/mpeg | Duration: 35:36

In less than a decade, Meat Fight has grown from a backyard barbecue to its own non-profit organization that hosts several different fundraising events, offers some unique programs for people affected by MS, and has raised more than $1 million dollars for the National MS Society. My guest is Alice Laussade, the creator and "energy" behind Meat Fight, and the very definition of a real MS Warrior. We're also talking about cannabis & MS, stem cells & MS, and lots more. Are you ready for RealTalk MS?

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