Summary: Sharon Fontaine Terry is the president and CEO of Genetic Alliance, a nonprofit that advocates for advancing genomic research. While she is now heavily involved in the world of genetics, she was in fact the first non-researcher and lay-person to discover a gene, which began when her children were diagnosed with a rare disease. She shares her Brief But Spectacular take on revolutionizing research. PBS NewsHour is supported by - https://www.pbs.org/newshour/about/funders
