When the promise of Gene therapy does not apply to your child

Summary: <p>On today's show, our guest is Batten CLN8's dad, Muhammad Dawood, who talks with us about Hannah, his terminally ill child.</p> <p>From a normal life to a nightmare of testing to broken hopes for therapy. Muhammed explains what it was like, what happened and what is like now in today's rare disease world and gives a few important tips for parents just coming into this disease.</p> <p>To support Hannah and follow her on social media:</p> <p>Instagram: @hanna_cln8</p> <p><br></p>