Lucy Faith and her Army

Summary: <p>The journey of one family struggles with not one but two diagnosed children with batten disease. listen about Ollie and Amelia's fight for the right to get life-saving therapies as Lucy and Mike Faith take on the English government! From healthy children to seizures and a meeting with Prince Harry, This brave family kept fighting to save their children's lives, eventually getting Enzyme Replacement therapy. A first-ever feat in the UK. </p> <p>Along with an army of England behind them, this family broke through every wall in front of them to get Ollie the best treatment possible. Then Amelia was diagnosed positive as well... </p> <p>"As parents, we have found it a constant struggle with doctors and other health professionals to get Ollie and Amelia the best care. We will arrive at hospitals in emergency situations and doctors don’t know what to do as the disease is so rare they have never seen another child with this condition. We end up having to tell the doctors how to treat our own child, as we are the ones who have done the research, we are the ones living the nightmare."</p> <p>One family. Two children with Battens Disease.</p> <p>To reach out to Lucy and help her in the fight to save her children visit:</p> <p>olliesarmy.co.uk</p> <p>Facebook:</p> <p><a href="https://www.facebook.com/olliesarmybattlingagainstbattens/#">@olliesarmybattlingagainstbattens</a></p> <p>Twitter:</p> <p>@olliebobsarmy</p> --- Support this podcast: <a href="https://anchor.fm/christopher-velona/support" rel="payment">https://anchor.fm/christopher-velona/support</a>