If We Knew Then - Down Syndrome Podcast show

If We Knew Then - Down Syndrome Podcast

Summary: We are Stephen and Lori Saux and welcome to the If We Knew Then Podcast. We are parents of two children and one of them has Down Syndrome, Liam. When Liam was born we didn't know very much about Down Syndrome and most of the information we did have didn't seem very hopeful and positive. Well this podcast aims to share honest and useful conversations about supports, therapies, education and society as it pertains to Down Syndrome advocacy and parenting. WEBSITE: https://ifweknewthen.com

Join Now to Subscribe to this Podcast
  • Visit Website
  • RSS
  • Artist: Stephen and Lori Saux
  • Copyright: Copyright 2020 All rights reserved.

Podcasts:

 8. Early Intervention - Interview with Caroline Bencze-Fernandez | File Type: audio/mpeg | Duration: 26:20

Interview with Child Development Specialist, Caroline Bencze-Fernandez. She explains the importance of Early Intervention, how therapies have changed throughout her 30 year career and what parents should know. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/05/14/8-early-intervention-interview-with-caroline-bencze-fernandez/2/  Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

 7. Prenatal Care and Advocacy - Interview with Julie Picot | File Type: audio/mpeg | Duration: 32:59

Interview with Julie Picot discussing her birth story, some of the misinformation she encountered and how she dealt with the post diagnosis fears.

 6. Managing The Stresses - The Emotional Parts of Special Needs Parenting | File Type: audio/mpeg | Duration: 26:14

This episode focuses on a sometimes challenging aspect of parenting a child with Down Syndrome. The emotional part of dealing with IEPs, assessments and evaluations that seem to happen right around our children's birthday celebrations. We discuss how we managed these stresses and how we maybe would have done some things differently. Full Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/04/30/ep-6-managing-the-stresses/3/  https://www.IfWeKnewThen.com Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN. 

 5. Preparing For Your IEP - What We Wish We Knew Then | File Type: audio/mpeg | Duration: 29:34

In this episode we discuss preparations and expectations of IEP meetings, what we wish we would have known years ago and the advantages of having an advocate or attorney by your side. Full Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/04/24/5-preparing-for-your-iep/3/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

 Introduction - Our Down Syndrome Advocacy Story | File Type: audio/mpeg | Duration: 00:52

Hello and welcome to the If We Knew Then Podcast. We are parents of two children and one of them has Down Syndrome, Liam. When Liam was born we didn't know very much about Down Syndrome and most of the information we did have didn't seem very hopeful and positive. Well this podcast aims to share honest and useful conversations about supports, therapies, education and society as it pertains to Down Syndrome parenting. Full Episode Transcript:Full Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/04/23/introduction-our-down-syndrome-advocacy-story/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

 4. In-School Physical Therapy - Down Syndrome - Natalie Spiteri | File Type: audio/mpeg | Duration: 24:45

PT in School. Qualifying for services and what to expect with a child with Down Syndrome. Interview with Pediatric Physical Therapist Natalie Spiteri. Full Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/04/24/4-in-school-physical-therapy-natalie-spiteri/3/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

 3. Early Intervention Physical Therapy - Down Syndrome - Natalie Spiteri | File Type: audio/mpeg | Duration: 30:00

Early Intervention PT. What is it? How to get it? What to expect and how can parents of children with Down Syndrome use it to its fullest. Interview with Pediatric Physical Therapist Natalie Spiteri. Full Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/04/24/3-early-intervention-physical-therapy-natalie-spiteri/3/  Gross Motor Skills for Children With Down Syndrome: A Guide for Parents and Professionals (Topics in Down Syndrome) https://www.amazon.com/dp/1606130099/ref=cm_sw_r_cp_api_i_YYaNEb5AEFWZ3 Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

 2. All That Annual Stuff - IEP and Assessments | File Type: audio/mpeg | Duration: 35:21

Dealing with IEP's and Assessments that seem to happen around our children’s birthdays. Talking through the process of these events in our lives and how they effect all IEP families. Not just those associated with Down Syndrome. Full Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/04/23/2-all-that-annual-stuff-iep-and-assessments/3/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

 1. COVID-19 and IEPs - Special Episode with Georgianna Junco-Kelman | File Type: audio/mpeg | Duration: 54:00

What should we do at this time? Are IEP's happening? What should we expect? How does this impact next school year? We feel fortunate that Liam's Elementary School Team is doing their best to support us in helping Liam access his schoolwork.  We know that this is not always the case and that parents are having a lot of questions. We hope this helps to answer some of them. Thank you to Georgianna and the knowledge she shares in this episode. Special Guest Georgianna Junco-Kelman of https://www.SpecialKidsAttorney.com Contact your Senator: https://www.senate.gov/general/contact_information/senators_cfm.cfm Contact your Representative: https://www.house.gov/representatives Full Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/04/23/1-covid-19-and-ieps-special-episode-with-georgianna-junco-kelman/3/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website www.ifweknewthen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN. 

Comments

Login or signup comment.