If We Knew Then - Down Syndrome Podcast show

If We Knew Then - Down Syndrome Podcast

Summary: We are Stephen and Lori Saux and welcome to the If We Knew Then Podcast. We are parents of two children and one of them has Down Syndrome, Liam. When Liam was born we didn't know very much about Down Syndrome and most of the information we did have didn't seem very hopeful and positive. Well this podcast aims to share honest and useful conversations about supports, therapies, education and society as it pertains to Down Syndrome advocacy and parenting. WEBSITE: https://ifweknewthen.com

Join Now to Subscribe to this Podcast
  • Visit Website
  • RSS
  • Artist: Stephen and Lori Saux
  • Copyright: Copyright 2020 All rights reserved.

Podcasts:

 38. Moving Into A New Year One Moment At A Time | File Type: audio/mpeg | Duration: 24:44

In this episode Stephen and Lori discuss facing some of the difficulties of 2020 and how to move onto a fresh new year in a positive way.Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/01/06/38-moving-into-a-new-year-one-moment-at-a-time/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

 37. Our Community’s Response To Emmerdale’s Negative Storyline About Down Syndrome - Cristina Bowman | File Type: audio/mpeg | Duration: 40:16

In this episode we talk with Cristina Bowman of Diff-Ability about the British soap opera Emmerdale and it’s recent storyline which depicts a couple having an abortion because their baby has Down syndrome. Petition against Emmerdale: https://www.change.org/p/itv-bin-emmerdale-s-prejudiced-storyline-about-down-s-syndrome?recruited_by_id=2f3349b0-f96d-11e5-80fd-c1f380c9ade0 DIff-Ability: https://www.diffability.co.uk 10% Videos: https://www.youtube.com/playlist?list=PLzOTYSYK2uvr96j-WowLKrxwDG-u9EsRx  Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/12/05/37-our-communitys-response-to-emmerdales-negative-storyline-about-down-syndrome-with-cristina-bowman/2/  Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

 36. Giving Everyone Access to a Down Syndrome Specialty Clinic with DSC2U - Dr. Brian Skotko | File Type: audio/mpeg | Duration: 46:05

We are thankful to have Dr. Brian Skotko on today’s episode. Dr. Brian is the director of the Down Syndrome Program at Massachusetts General Hospital, a Board-certified medical geneticist and has dedicated his professional energies toward children with cognitive and developmental disabilities.  Today we talk about his new online clinic, DSC2U, the importance of inclusion and how we as a community can help the medical profession improve their delivery of a Down syndrome diagnosis.DSC2U: https://dsc2u.org  LUMIND IDSC FOUNDATION: www.lumindidsc.org Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/11/25/36-giving-everyone-access-to-a-down-syndrome-specialty-clinic-with-dsc2u-dr-brian-skotko/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

 35. Building a Realistic Approach to a Healthy Dental Routine - Dr. Jill Lasky | File Type: audio/mpeg | Duration: 26:06

In our second interview with Dr. Jill we discuss the methods and tools for parents who want to support their children in making good dental health habits.Lasky Pediatric Dental Group: https://www.laskypediatricdental.comEpisode Transcript: https://ifweknewthen701833686.wordpress.com/2020/11/19/35-creating-a-realistic-approach-to-a-healthy-dental-routine-dr-jill-lasky/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

 34. How To Use The Summertime To Your Advantage | File Type: audio/mpeg | Duration: 30:49

The summer is a time to play and relax but if you use it as a time to front load for the coming school year, as well, it can be that academic advantage you have been looking for.Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/11/16/34-how-to-use-the-summertime-to-your-advantage/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

 33. Our Congratulations Message to New Parents | File Type: audio/mpeg | Duration: 44:03

We originally created this podcast to support parents of children with Down syndrome and this episode is directed specifically to new parents who have just recently received their child’s diagnosis. Our message is of hope and possibility in a world which often offers very little.Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/11/13/33-our-congratulations-message-to-new-parents/2/Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

 32. Changing Our World - Chris Nikic's 1% Philosophy | File Type: audio/mpeg | Duration: 47:35

Chris joins us again with his parents, Nik and Patty to discuss how they have changed their approach to learning and how that has prepared Chris to do things no person with Down syndrome has ever done before.Chris’s Website: https://chrisnikic.com Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/11/05/32-changing-our-world-chris-nikics-1-philosophy/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

 31. Using The Arts To Tell Your Story - A Conversation with Nic Novicki | File Type: audio/mpeg | Duration: 31:32

Nic joins us again to talk about the Easterseals Disability Film Challenge and letting your voice be heard through the arts.Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/10/29/31-using-the-arts-to-tell-your-story-a-conversation-with-nic-novicki/2/ The Easterseals Disability Film Challenge: https://disabilityfilmchallenge.com Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

 30. Down Syndrome Awareness Month: Working Together To Change Perceptions | File Type: audio/mpeg | Duration: 37:11

In honor of Down Syndrome Awareness Month we discuss our part, as a community, in changing the perceptions of Down syndrome through our thoughts and words. We also look back on some lessons we have learned from past guests.Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/10/22/30-down-syndrome-awareness-month-working-together-to-change-perceptions/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

 29. Insights Into Our First COVID-19 IEP Session | File Type: audio/mpeg | Duration: 34:17

We just had our first Zoom IEP session since the pandemic started and we have found several new things that parents should be aware of. We also further discuss ways to prepare for these meetings and touch on questions every parent should ask their IEP team.Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/10/15/29-insights-into-our-first-covid-19-iep-session/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com  to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

 28. A Story of Inclusion with Eleanor Baggaley – ‘Ava the Mermaid’ | File Type: audio/mpeg | Duration: 43:58

Our conversation with author, wife, mother of three and Down syndrome advocate, Eleanor Baggaley. We discuss inclusion and her children’s books, particularly ‘Eva the Mermaid’. Eleanor also shares about her work with the organization Positive About Down Syndrome and some of her future plans of advocacy in the community.Eleanor’s Website: https://www.eleanorbaggaley.com/shopPositive About Down Syndrome: https://positiveaboutdownsyndrome.co.ukEpisode Transcript: https://ifweknewthen701833686.wordpress.com/2020/10/08/28-a-story-of-inclusion-with-eleanor-baggaley-author-of-ava-the-mermaid/2/Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN. 

 27. Our IEP Process - Some Things We Have Learned | File Type: audio/mpeg | Duration: 41:39

IEP's can be very overwhelming especially when you feel like you don't have all the information that you want to have. In this episode we share some of the things we have learned to be helpful during this sometimes stressful process and ways to advocate for your child while still keeping your peace.Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/09/28/27-our-iep-process-somethings-we-have-learned/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

 26. PALS Programs - A Deeper Conversation About Down Syndrome | File Type: audio/mpeg | Duration: 32:00

Our second interview with members of the PALS Programs. We talk about how the PALS Programs is planning for future camps and some of the more personal experiences the founders of the organization have with Down syndrome. Joining us is Executive Director, Jenni Newbury Ross and her mother Robyn and brother Jason. We were also joined by Congratulations Project Associate, Grace Wahle and Communications Coordinator, Colton Davies. PALS Program: https://www.palsprograms.orgCongratulations Project: https://www.congratulationsproject.orgEpisode Transcript: https://ifweknewthen701833686.wordpress.com/2020/09/24/26-pals-programs-a-deeper-conversation-about-down-syndrome/2/Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

 25. A Right to Celebrate - When the Medical Profession Steals the Joy of New Parents - Rachel Mewes | File Type: audio/mpeg | Duration: 30:18

Our second interview with Rachel Mewes. Rachel is a contributing editor to Making Chromosomes Count, the Down syndrome community newspaper. She opens up on her not so uncommon birth story and the prejudices she found in the medical profession.Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/09/17/25-a-right-to-celebrate-when-the-medical-profession-steals-the-joy-of-new-parents-rachel-mewes/2/Making Chromosomes Count: http://makingchromosomescount.co.uk Making Chromosomes Count on Twitter: https://twitter.com/ChromosomesNews Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN. 

 24. The Importance of Disability Inclusion in Film - Nic Novicki | File Type: audio/mpeg | Duration: 31:52

Comedian, actor, producer and disability advocate Nic Novicki joins us to talk about the Easterseals Disability Film Challenge and the importance of disability inclusion in film.Film Challenge Website: https://disabilityfilmchallenge.com Our 2020 EDFC entry: https://youtu.be/WiX-rt51szo All the challenge’s films on YouTube: https://www.youtube.com/playlist?list=PLOhZ4i5Tnk3iq44Tzn03rBMOcr0bqFrnV Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/09/11/24-the-importance-of-disability-inclusion-in-film-nic-novicki/2/  Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

Comments

Login or signup comment.