Contact A Family - Podcasts
Summary: Contact a Family is the only national charity that exists to support the families of disabled children whatever their condition or disability. With over 30 years of experience, our vision is that families with disabled children are empowered to live the lives they want and achieve their full potential, for themselves, for the communities they live in, and for society. It's why we offer support, information and advice to over 340,000 families each year and campaign for families to receive a better deal.
Hirschsprung's disease is a condition where the nerves cells of the large intestine are absent, so normal bowel movement is not possible. In this podcast a mother talks about what it is like to have a son with this condition.
Neuronal migration disorders (NMDs) are a group of birth defects caused by the abnormal migration of neurons in the developing brain and nervous system. In this podcast Contact a Family talks to a mother whose daughter has an x-linked neuronal migration disorder.
Polymicrogyria is a condition characterised by abnormal development of the brain before birth. The surface of the brain normally has many ridges or folds, in Polymicrogyria the brain develops too many folds and these are unusually small. In this podcast a mother talks how Polymicrogyria affects her daughter and family life.
The group of diseases known as Batten disease or the neuronal ceroid lipofuscinoses (NCLs) are rare, genetic, progressive neurodegenerative, metabolic diseases that occur in children and adults worldwide. This podcast is an honest account of a mother's experience of having a son with Juvenile Batten disease.
Disability Living Allowance (DLA) is the main benefit for disabled people and is there to help meet any extra costs of being disabled. Listen to this podcast to hear the Contact a Family helpline advisers provide more information about this benefit.
Dravet syndrome is a rare type of epilepsy. In this podcast a father talks about his experiences of having a child with this condition.
McCune-Albright syndrome is a rare genetic disorder affecting the bones and skin pigmentation. It is also associated with endocrine problems. In this podcast an adult talks about how McCune-Albright syndrome has affected her life.
All parents want their children to do well at school. Some children may need more support than others to achieve their potential and this may be because they have a disability, medical condition or other additional needs. This podcast is an interview with two of Contact a Family's helpline advisers that provides information about the different levels of support for children with special educational needs (SEN) and what you can do if you are not happy with the support your child gets. If you need further clarification of any of the points discussed call the Contact a Family freephone helpline.
It costs more to raise a disabled child and some families need additional financial help. This podcast provides an overview of what the social fund is and the sort of things it can help fund.
ESA came into effect in October 2008 and replaced Incapacity Benefit and Income Support. This podcast is an interview with a Contact a Family adviser and provides more details about this benefit.
This podcast is an honest account of a Mum's experience of having a child with Late Infantile Batten disease.
Contact a Family receives funding from a number of sources which help us provide a range of services for families. Our Lewisham Office, thanks to funding from the borough council, has been able to offer some families in the borough the opportunity to have a weekend away with other families. Listen to the parents talk about what the experience means to them and their families.
Contact a Family CEO highlights the work of the charity during it's 30th year celebrations.
How to access support and advice online using social networking. Connect with other families other families or parent advisers and keep up to date through Facebook, YouTube and Twitter. You can also meet other families with similar conditions using our Making Contact website.